https://rare-disease.ru/news/prezident-rossii-podpisal-federalnyj-zakon-o-rasshirenii-spiska-zabolevanij-dlya-lecheniya-kotoryh-lekarstva-zakupayutsya-za-schyot-gosudarstva/ 2019-11-13T09:34:28+00:00 https://rare-disease.ru/informacziya/spisok-redkih-orfannyh-zabolevanij-2019-god/ 2020-03-11T09:50:36+00:00 https://rare-disease.ru/news/ob-izmeneniyah-v-poryadke-obespecheniya-lekarstvennymi-preparatami-grazhdan-stradayushhih-redkimi-zabolevaniyami/ 2020-03-11T09:51:50+00:00 https://rare-disease.ru/diseases/serpovidno-kletochnaya-anemiya/ 2020-06-09T06:34:37+00:00 https://rare-disease.ru/wp-content/uploads/elpeleg.jpg https://rare-disease.ru/diseases/aplastic_anemia/ 2020-06-09T06:41:15+00:00 https://rare-disease.ru/wp-content/uploads/prof.-polina-stepenski-min-273x300.png https://rare-disease.ru/diseases/hronicheskaya-granulematoznaya-bolezn-hgb/ 2020-06-09T06:42:50+00:00 https://rare-disease.ru/wp-content/uploads/prof.-polina-stepenski-min-273x300.png https://rare-disease.ru/diseases/ipex-sindrom/ 2020-06-09T12:05:55+00:00 https://rare-disease.ru/wp-content/uploads/vania-i-mama.jpg https://rare-disease.ru/wp-content/uploads/prof.-polina-stepenski-min-273x300.png https://rare-disease.ru/wp-content/uploads/elpeleg.jpg https://rare-disease.ru/informacziya/transplantacziya-kostnogo-mozga-pri-orfannyh-zabolevaniyah/ 2020-06-09T12:10:52+00:00 https://rare-disease.ru/wp-content/uploads/prof.-polina-stepenski-min-273x300.png https://rare-disease.ru/wp-content/uploads/osteopetroz-i-corona.jpg https://rare-disease.ru/wp-content/uploads/dr.-irina-zaidman.jpg https://rare-disease.ru/wp-content/uploads/vania-i-mama.jpg https://rare-disease.ru/wp-content/uploads/gabriel.jpg https://rare-disease.ru/wp-content/uploads/lisa.jpg https://rare-disease.ru/informacziya/spisok-redkih-orfannyh-zabolevanij-za-2020-god-dopolnennyj-ot-18-maya-2020-g/ 2020-06-25T08:03:10+00:00 https://rare-disease.ru/informacziya/perechen-redkih-orfannyh-zabolevanij-ot-4-marta-2021-goda/ 2021-03-24T13:10:37+00:00 https://rare-disease.ru/diseases/metahromaticheskaya-lejkodistrofiya/ 2021-03-29T08:40:56+00:00 https://rare-disease.ru/wp-content/uploads/prof.-polina-stepenski-min-273x300.png https://rare-disease.ru/diseases/pervichnye-immunodeficzity/ 2021-06-28T08:51:52+00:00 https://rare-disease.ru/wp-content/uploads/prof.-polina-stepenski-min-273x300.png https://rare-disease.ru/wp-content/uploads/vania-i-mama.jpg https://rare-disease.ru/wp-content/uploads/gabriel.jpg https://rare-disease.ru/diseases/sindrom-viskotta-oldricha/ 2021-06-28T08:54:54+00:00 https://rare-disease.ru/wp-content/uploads/prof.-polina-stepenski-min-273x300.png https://rare-disease.ru/wp-content/uploads/elpeleg.jpg https://rare-disease.ru/diseases/sindrom-di-dzhordzha/ 2021-06-28T08:55:16+00:00 https://rare-disease.ru/wp-content/uploads/prof.-polina-stepenski-min-273x300.png https://rare-disease.ru/diseases/sindrom-chediaka-higasi/ 2021-06-28T08:55:42+00:00 https://rare-disease.ru/wp-content/uploads/prof.-polina-stepenski-min-273x300.png https://rare-disease.ru/diseases/sindrom-kostmanna-detskij-geneticheski-determinirovannyj-agranuloczitoz/ 2021-06-28T08:56:07+00:00 https://rare-disease.ru/wp-content/uploads/prof.-polina-stepenski-min-273x300.png https://rare-disease.ru/diseases/sindrom-shvahmana-dajmonda/ 2021-06-28T08:56:25+00:00 https://rare-disease.ru/wp-content/uploads/prof.-polina-stepenski-min-273x300.png https://rare-disease.ru/diseases/mukopolisaharidoz-i-tipa/ 2021-06-28T08:56:45+00:00 https://rare-disease.ru/wp-content/uploads/prof.-polina-stepenski-min-273x300.png https://rare-disease.ru/diseases/mukopolisaharidoz-vii-tipa-sindrom-slaya/ 2021-06-28T08:58:14+00:00 https://rare-disease.ru/wp-content/uploads/prof.-polina-stepenski-min-273x300.png https://rare-disease.ru/diseases/adrenolejkodistrofiya/ 2021-06-28T08:58:43+00:00 https://rare-disease.ru/wp-content/uploads/prof.-polina-stepenski-min-273x300.png https://rare-disease.ru/diseases/osteopetroz-mramornaya-bolezn/ 2021-06-28T08:59:07+00:00 https://rare-disease.ru/wp-content/uploads/prof.-polina-stepenski-min-273x300.png https://rare-disease.ru/wp-content/uploads/osteopetroz-i-corona.jpg https://rare-disease.ru/wp-content/uploads/osteo2.jpg https://rare-disease.ru/diseases/vrozhdennyj-diskeratoz/ 2021-06-28T08:59:43+00:00 https://rare-disease.ru/wp-content/uploads/prof.-polina-stepenski-min-273x300.png https://rare-disease.ru/wp-content/uploads/selin.jpg https://rare-disease.ru/diseases/tyazhelyj-kombinirovannyj-immunodeficzit-tkid/ 2021-06-28T09:00:17+00:00 https://rare-disease.ru/wp-content/uploads/prof.-polina-stepenski-min-273x300.png https://rare-disease.ru/wp-content/uploads/gabriel.jpg https://rare-disease.ru/diseases/h-sczeplennyj-limfoproliferativnyj-sindrom/ 2021-06-28T09:00:43+00:00 https://rare-disease.ru/wp-content/uploads/prof.-polina-stepenski-min-273x300.png https://rare-disease.ru/diseases/beta-talassemiya/ 2021-06-28T09:01:10+00:00 https://rare-disease.ru/wp-content/uploads/prof.-polina-stepenski-min-273x300.png https://rare-disease.ru/wp-content/uploads/thalassemia-siblings.jpg https://rare-disease.ru/diseases/bolezn-krabbe/ 2021-06-28T09:03:19+00:00 https://rare-disease.ru/wp-content/uploads/prof.-polina-stepenski-min-273x300.png https://rare-disease.ru/diseases/sindrom-omenna/ 2021-06-29T06:32:04+00:00 https://rare-disease.ru/wp-content/uploads/prof.-polina-stepenski-min-273x300.png https://rare-disease.ru/diseases/gemofagoczitarnyj-limfogistioczitoz/ 2021-06-29T06:38:28+00:00 https://rare-disease.ru/wp-content/uploads/prof.-polina-stepenski-min-273x300.png https://rare-disease.ru/wp-content/uploads/2-bros-scaled.jpg https://rare-disease.ru/diseases/mukopolisaharidoz-vi-tipa-sindrom-maroto-lami/ 2021-06-29T06:39:42+00:00 https://rare-disease.ru/wp-content/uploads/elpeleg.jpg https://rare-disease.ru/diseases/tuberoznyj-skleroz/ 2021-06-29T06:41:11+00:00 https://rare-disease.ru/wp-content/uploads/dr.-tal-gilboa-min.png https://rare-disease.ru/wp-content/uploads/prof.-vardiela-mainer-min.png https://rare-disease.ru/diseases/aspartilglyukozaminuriya/ 2021-06-29T06:41:41+00:00 https://rare-disease.ru/wp-content/uploads/elpeleg.jpg https://rare-disease.ru/diseases/semejnaya-sredizemnomorskaya-lihoradka/ 2021-06-29T06:42:10+00:00 https://rare-disease.ru/wp-content/uploads/prof.-eldad-ben-shitrit-min-273x300.png https://rare-disease.ru/wp-content/uploads/fmf.png https://rare-disease.ru/diseases/mukovisczidoz-kistoznyj-fibroz/ 2021-06-29T06:42:48+00:00 https://rare-disease.ru/wp-content/uploads/prof.-eitan-kerem.jpg https://rare-disease.ru/wp-content/uploads/prof.-michael-vilshanski-min.png https://rare-disease.ru/wp-content/uploads/cf2.jpg https://rare-disease.ru/wp-content/uploads/cf1-scaled.jpg https://rare-disease.ru/diseases/alfa-mannozidoz/ 2021-06-29T06:43:19+00:00 https://rare-disease.ru/wp-content/uploads/elpeleg.jpg https://rare-disease.ru/diseases/distrofiya-dyushenna/ 2021-06-29T06:47:54+00:00 https://rare-disease.ru/wp-content/uploads/elpeleg.jpg https://rare-disease.ru/diseases/sindrom-nemo/ 2021-06-29T06:57:50+00:00 https://rare-disease.ru/wp-content/uploads/prof.-polina-stepenski-min-273x300.png https://rare-disease.ru/doctor/polina-stepenski/ 2022-02-03T11:12:42+00:00 https://rare-disease.ru/wp-content/uploads/prof.-polina-stepenski-min-1.png https://rare-disease.ru/diseases/anemiya-fankoni/ 2022-02-03T12:18:13+00:00 https://rare-disease.ru/wp-content/uploads/prof.-polina-stepenski-min-273x300.png